Dzierżysław -stara Kopalnia Gipsu

idic15 - meeting in Prato in September and requested information about the association amended CAA

Dear friends and family in Italy, I
a year and a half in this group and I am very happy with your
activities.
Our situation is that we have a child with idic15
not speak at all and who also has a great delay in its ability to
learning, concentration etc.. Have for years been in contact with families
in Europe and the United States, and two years ago I co-founded an association for families in Italy
(nonsolo15). I worked with the child Nosrati
with pecs, I was very fortunate to have support and advice
two teachers who work in Germany (German). Our
Fabio, after initial problems, has made many improvements, so we really
remained open mouth of his ability. Unfortunately
now I find myself quite alone and Fabio does not go ahead because I miss
education of a skilled person, and with such bitterness I
a bit 'surrender.
We would do this year, the second meeting of families with children with
this rare genetic syndrome. It will be in Prato, near Florence, in a
old convent in the diocese. My question to you all would be: I
parents have asked about the different comunicazione.Ci
would be someone or you know someone who might be our
reference, give an idea of \u200b\u200bthe possibilities it offers to our
AAC and communication in general (there are also children who speak, but many problems of communication remain
)?
And my idea (maybe too risky): Perhaps the Italian group
could do right there is a parallel event? The convent is large, there are
up to one hundred beds, full board costs
50.00 per adult, children have the discounts. This ultimate
second is just an idea that I did not want butarvia. The first question is really important because
nesun of us have contact with a specialist
concerned. Other
themes of our meeting will be: Advice
medical / genetic / scientific syndrome - psychological support for
face our situation - therapeutic strategies (and perhaps
musicaterapia aba)
The meeting will be the 10/11/12 of September in Prato , villa of the stage house
withdrawals.
Our site (you may often not be reached for
Hotel renovated) is www.invdup15.org
For every answer I would be happy.
Greetings, Christine, mother of Fabio Cannugi (idic15)
nonsolo15 association for research and support of family and friends of people with
invdup15 syndrome (idic15) non-profit organization
Castle 15 Papiano Be
52017 (AR)
tel.: 0575 583950
acannugi@alice.it
www.invdup15.org